NKH Stories from Around the Globe

Avery, Yukon, OK

Avery has Glycine encephalopathy (GCE) or nonketotic hyperglycinemia is an inborn error of glycine metabolism, inherited in an autosomal recessive manner due to a defect in her GLDC gene in…

Your child has been diagnosed with NKH. Now what?

Do not fear, there are more options for your baby than you may have been told.