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Spring 2022 – Virtual NKH Conference

Join us via Zoom, Saturday April 2nd at 12:00 EST

Hear vital updates from NKH Researchers, learn more about Keto Diet for NKH, a new severity scale model to assist with early diagnosis, and more.
The conference is free to attend, and we encourage you to invite members of your care team (doctors, specialists, caregivers, etc) to join in learning more about NKH.


2022 NKH Conference

Join us to hear vital research updates from Notre Dame, University of Colorado, Boston Children's Hospital and more! The three day event will consist of two full days of conference, with time allotted for one-on-ones with Dr. VanHove and Dr. Kasturi with a fundraising dinner Friday Night at the Tirrell Room in Quincy, MA.