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Latest Past Events

2022 NKH Fundraiser

The Tirrell Room 254 Quarry St, Quincy

Friday evening, October 21, 2022 a dinner will be hosted to raise money for NKH Research. We hope you and your family can join us for dinner, raffles, and an auction to help raise funds for the continuance of NKH Research.


2022 NKH Conference

Join us to hear vital research updates from Notre Dame, University of Colorado, Boston Children's Hospital and more! The three day event will consist of two full days of conference, with time allotted for one-on-ones with Dr. VanHove and Dr. Kasturi with a fundraising dinner Friday Night at the Tirrell Room in Quincy, MA. 


Spring 2022 – Virtual NKH Conference

Join us via Zoom, Saturday April 2nd at 12:00 EST

Hear vital updates from NKH Researchers, learn more about Keto Diet for NKH, a new severity scale model to assist with early diagnosis, and more.
The conference is free to attend, and we encourage you to invite members of your care team (doctors, specialists, caregivers, etc) to join in learning more about NKH.