Global Connections

Empowering families diagnosed with NKH (Nonketotic Hyperglycinemia) with access to the resources and education they need for standards of care, treatment options, and current research data. 

Global Connections

Empowering families diagnosed with NKH (Nonketotic Hyperglycinemia) with access to the resources and education they need for standards of care, treatment options, and current research data. 

Need Help?

We all share common challenges with NKH. Developing a patient registry and connecting all families across the globe is our goal. We want to help equip you with the latest information and research for better treatment and improved quality of life. We are here to provide friendship and most of all hope!

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Clinical Research Library

Research is forever evolving in NKH. We will do our best to keep this library updated with the most current clinical data regarding NKH treatments and gene therapy. It is not a matter of if there is a cure or better treatment coming but when. With collaborative efforts, we can help the researchers prepare for clinical studies. Be inspired

Coming Soon

Patient Registry

The NKH community is a very small but mighty group. We are determined to fund and find a cure or better treatment for those diagnosed with NKH. Join the community and discover experienced peers to help you navigate this journey. Help the researchers by completing the patient registry and providing medical information.

Register

"In the land of the unknown, we have to try."

Dr. Johan VanHove M.D. University of Colorado